Managing an ALS diagnosis is a lot like bungee jumping. You feel like you have absolutely no control over how you fall, and you’re always living with the uncertainty of when the rope is finally going to break. But what choice do we really have? Quitting is not an option. So part of that management … Read more
The other day I talked about the ALS Clinic and the ALSFRS-R score, and how I attend this clinic every three months and spend several hours with a team of experts in different fields all related to the management of ALS. So what the heck do all these people do? I’m glad you asked. 🙂 … Read more
Hey, just an FYI. This story is a little different from some of my recent posts. It’s more educational/awareness sort of thing, providing some medical-related insight into my ALS journey. As I’ve referenced over and over, I love me a competition. I was always of the mindset that If they keep score, I wanted to … Read more
At that moment, everything we worked for was on the line. After the gut punch we just took, the easiest thing in the world to do would be to fold. Honestly, it seemed inevitable. But that’s not the attitude that got us here and wouldn’t be the way we were destined to leave. It was … Read more
The recent passing of James Caan generated a flood of memories and a story of unanswered questions. But first, I’m going to rant a bit and then contradict myself. I’m good at that. 🙂 And then I’ll explain how something I now rail against had such an impact on me in the past. I loathe … Read more
I didn’t really think that a significant increase in the number of life flashbacks was one of the side effects of ALS, but here we are… again. Just so you know, I’m thinking this may be an ongoing issue (at least I hope for a while). 🙂 Yes, another week, another flashback, this time back … Read more