“I’m tired, Boss” – Big John Coffee, in The Green Mile. Trust me, John, I think I know how you feel. I’m tired, too. I’m tired of hearing about people suffering and dying. I had recently created a list of ALS-related follows on Twitter – patients, caregivers, industry resources – which provided some insight as … Read more
A mutual acquaintance introduced us. She said her name was Melanie. Good to know, I filed it away. Sure, I thought she was cute, but she was one of a billion fish in the sea. Come to find out, she thought I was somewhat obnoxious and a little too full of myself. Fair enough. And … Read more
I always tried to consider the paths I traveled throughout my life as a journey, not a destination. And I always felt inclined to take the path less traveled, frequently to my own detriment. Often wrong, but always certain, I would set off on my way. Over the years, the adventures along these paths, with … Read more
Hey. Thought I’d say hello. Been a while. Hope you had a great Christmas. And, yeah, Happy New Year! I kinda bailed from here the past six weeks or so as I tried to work through a glitch in the PMA. As this disease progresses, it seems like these glitches are happening more frequently, which, … Read more
Ah, the pursuit of perfection. To attain the unattainable. A desire to do something special that will withstand the test of time. Whether it be in sports or life, that level of success can provide a memorable legacy for those so fortunate to be involved. And years ago, I shared that special experience with some … Read more
I’ve written previously about winning the reverse lotto. You know, those 50,000-to-1 odds of being diagnosed with what some people call “the cruelest disease “ – ALS. While I somehow punched that ticket, unfortunately I’ve still had no luck on the real Lotto. (And filling in every number didn’t seem to help either. Go figure). … Read more
It’s there. In the simplest of things. In the most minor of details. In that moment, or in that activity. It’s there. Unfortunately, all too often, we miss it. Or worse, we dismiss it. What is it? It, well it is everything around us that we have to be thankful for. Look, it would be … Read more
When people say they started out in the trenches, for most folks, it’s a metaphor. For people like me, who actually *did* start out in the trenches, we simply look around and ask, what’s a meta for? Yes, while it might be a cute little phrase for some folks who feel like they started at … Read more
As the waning days of Fall start to fade, these shorter days foretell the darkness of the Winter that lies ahead. In many ways, at least for me as I battle this cruel and ruthless disease ALS, they all too starkly represent a painful analogy to the realities and challenges that await me. So much … Read more
With a simple click of the mouse, 15 years of blood, sweat, tears, (and beers!) simply disappeared. Ok, maybe it doesn’t disappear, but it sure feels like it. Allow me to explain… Flashback to 2007, when I went to my sweet, loving, understanding, compassionate, trusting wife (bases covered) 🙂 with those ‘Three Little Words’ any … Read more