I’m pretty certain it was a 55 zone, though it could have been a 65 zone, I don’t know, the blur of the moment clouds any definitive recollection. Either way, it’s not like they were going to ticket me, right? Or would they? I find it interesting how the news of the day serves to … Read more
“I always knew the day would come, When I’d need to take a stand, Before I wasn’t sure I could, But now I know I can.” That was how I started my proposal poem as I dropped to one knee, on the edge of the Na Pali cliffs of Kauai, overlooking the Pacific Ocean. Being … Read more
I swear it’s unintentional, but I’m starting to feel like a Country DJ. Between the ‘Live Like You Were Dying’ post, and the ‘Buy Dirt’ post, and now the ‘How They Remember You’ post, I’m really starting to be concerned about jeopardizing my 80’s Rock street cred. 🙂 Funny aside: I was like seven years … Read more
It wasn’t up there with Martin Luther King’s “I Have a Dream…” but fortunately it wasn’t down there with a Steven King type of dream either. 🙂 Over the years, I’ve always been a very active dreamer. I attribute this to hearing the story of Wynken, Blynken, and Nod about 50 bazillion times as a … Read more
Remember that old commercial, where the poor lady cried out, “Help, I’ve fallen and I can’t get up”? It was a meme before memes were a thing. You laughed at the commercial. I laughed at the commercial. We all laughed at the commercial. We probably shouldn’t have, but we did. Everyone mocked the company. It … Read more
I’ve always been a gadget guy. New tech? Oh yeah. Something shiny? For sure. Early, early adopter? Guilty as charged. That new-fangled Video Cassette Recorder thing, the one with the 25-foot-long wired remote, circa 1983? Yeah, got it. Looking back, it’s embarrassing to think what I paid for it, but hey, it was new tech … Read more
I have a couple of confessions. First, if we’ve had any recent interaction, or enjoyed some brief convo lately, I’ve likely lied to you. Sorry. But, it’s been one of those “good lies” so it’s alright, right? I’ll put it in perspective with a little analogy… (ease up on the “oh no, here we go … Read more
Managing an ALS diagnosis is a lot like bungee jumping. You feel like you have absolutely no control over how you fall, and you’re always living with the uncertainty of when the rope is finally going to break. But what choice do we really have? Quitting is not an option. So part of that management … Read more
The other day I talked about the ALS Clinic and the ALSFRS-R score, and how I attend this clinic every three months and spend several hours with a team of experts in different fields all related to the management of ALS. So what the heck do all these people do? I’m glad you asked. 🙂 … Read more
Hey, just an FYI. This story is a little different from some of my recent posts. It’s more educational/awareness sort of thing, providing some medical-related insight into my ALS journey. As I’ve referenced over and over, I love me a competition. I was always of the mindset that If they keep score, I wanted to … Read more